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Resources

Organizations and websites

 

Hosted by trusted patient advocates, RareConnect is a place where rare disease patients can connect with others globally. Visit: rareconnect.org

Clinical resources

Recognizing Behçet’s Disease

Tips and information for when you suspect Behçet’s Disease

What is Behçet’s Disease?

A brief overview of Behçet’s Disease for newly diagnosed patients

Behçets Disease Infographic

Infographic with important facts about Behçet’s Disease

Resources for your patients with Behçet’s Disease

The Vasculitis Pregnancy Registry collects information on the reproductive health of women with vasculitis who become pregnant. Online surveys assess a) vasculitis severity and pregnancy-related experiences, and b) pregnancy outcomes.

Visit: vpprn.org/vpreg

The Vasculitis Patient-Powered Research Network works to improve the health of patients with vasculitis. Studies directly engage investigators, caregivers, and health systems to advance the medical knowledge and care of vasculitis. Visit VPPRN at: vpprn.org

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